Friday, April 13, 2012
Dwelling in the Desert, Part 1
Monday, February 20, 2012
At the Heart of the Matter
Monday, October 3, 2011
Trusting Jesus
"...I asked the class to draw a picture of a time they had to trust Jesus. I was touched when he shared that he had to trust Jesus when you were diagnosed with cancer for the 2nd time. He's a precious boy!"
This is the picture that my Little Middle drew:
Wednesday, September 28, 2011
In Which I Express Myself to Cancer
Saturday, June 25, 2011
About the Hair
Saturday, June 11, 2011
Peace and Quiet
Friday, May 27, 2011
My Story
At my church, this is our motto/mantra/mission statement. I was recently given the opportunity to share part of my story with my church family to reflect my personal commitment and the joy God has given me in my journey.
He is good, and He does good. This is my story.
Tuesday, April 5, 2011
Do's and Don'ts for the Chemo Room
1. DO mind your own business. We might have to share nurses, but my cancer is mine and your cancer is yours.
2. DO NOT ask me every time you see me if I've tried the peppermint-flavored water. Maybe I don't like peppermint. Or maybe I don't like water. Probably I'm running out of polite responses.
3. DO wear a nose strip if it keeps you from snoring while you nap.
4. DO NOT talk about nose hair. I do not want to hear about whether you have it or not, nor do I care to know whether blowing your nose is easier during allergy season if said nose hair has begun to grow back.
5. DO keep private information private. Just like sex, any conversation about bodily fluids and/or functions easily lends itself to a TMI label.
6. DO NOT offer to share your neck pillow or blanket with me. Ick.
7. DO NOT ask me about the specifics of my case. Chances are that I hate being here, and having to rehash the depressing details with a stranger only makes me hate it more.
8. DO cover your head. Chemotherapy is a beast, and we all know it. There is no need to flaunt what it has stolen from you, thereby reminding the rest of us what we have also lost.
9. DO NOT, under any circumstances, wear pajamas, a housecoat, your slippers, or a crown to the chemo room. No way can you keep your dignity if you do.
10. DO wear a bra. Please.
11. DO NOT say things like "These pole covers are so cute!" or "That was easy, wasn't it?" Nothing in the chemo room is cute or easy to deal with.
12. DO be very careful what you eat in the chemo room. Because Mexican food and chemotherapy don't mix.
Thursday, March 10, 2011
Hair Update
I wish I could say that looking in the mirror is easier these days, but that wouldn't be exactly true. Besides the mop o' mess, I am annoyed at the pasty white color of my skin. I am disgusted by the weight I lost last year and have managed to put back on (The Sickness and I will share the blame on this one). I have HAD IT! with the little zit that keeps showing up on my chin, regardless of how often I wash my face. I'm not 14 anymore, for crying out loud!
For as long as I can remember caring, I have always wanted to __________. Have better hair...lose weight...apply makeup like an expert...have clear skin...update my wardrobe--you can fill in the blank with almost anything that equates with prettiness. I don't feel much more comfortable in my body as a grown woman than I did in the awkward-for-everyone adolescent stage.
Understandable?
The Sickness has forced my hand in a lot of areas, but this is a big one for me. When Goliath was a baby, I used to recite this Bible verse to him (we had fun hand motions and everything!):
Now, if I could be so easily convinced that God took perfect care to weave my son together, what makes me think He would just toss together a few ingredients and hope for the best when it came to me? And if I could so readily and easily praise Him for the three miracles that are Goliath, Little Middle, and Baby, why would I neglect to praise Him for the miracle that I am?
Any good 12-step program will tell you that the first step to recovery is admitting that you have a problem. I have a problem with my self-image. The next steps in my "recovery" can be found in the pages of my Bible, where it says that I am special and loved...cancer, curls, and all.
Thursday, February 17, 2011
On This Day...
The year that has passed since February 17, 2010 has been harder than I could have ever imagined it could be. Not one single day has gone by that I have not lived and breathed the reality of cancer. I have been sicker than I ever thought possible. I have had to rely on my friends and family to care for me, and even worse, to care for my children. I've had to try to explain things to my sons that no child should ever have to even think about, let alone live with. I've listened to my husband cry in the middle of the night when he thought I was asleep. I've been poked, cut, prodded, and tested, and I've swallowed hundreds of pills. I've lost my hair. I've lost my dignity. I've lost my confidence.
Today, in a twist of irony, I had another appointment with Dr. M. I was going to find out the results of the CT scan I had on Tuesday and hear his advice on how to proceed with treatment. After several heart-stopping moments where I strained to hear his conversation with Nurse Michelle in the hallway, he entered the exam room and pronounced that no new tumors showed up on the scan. A great deal of back-and-forth ensued. I will spare you the details, but the bottom line is this: I will continue with the cytoxan/Avastin maintenance regimen for a few more months. At the end of that time, I will go for another scan and if all remains unchanged, I will be declared to be in remission and this leg of the cancer journey will be over.
You'd think that with the end in sight, I'd be thrilled, right? Actually, I am terrified. The news on my latest scan is good, no doubt about it. But to me, it's not a sigh of relief...it's just a delay of the inevitable. I've been told more than once that the cancer will surely invade my body again. Just because it isn't there now doesn't mean it isn't coming.
Dr. M was prepared to release me from treatment today. He saw things through different lenses than I do, however. He looks at me and sees a challenge, a science experiment, a few dollar signs, and maybe an opportunity. I look in the mirror and see a wife, a daughter, a sister, a friend, and a mother. The whole time he talked to me (or sometimes over me) today, all I could see in my mind's eye were my 3 little cowboys. Their faces were so clear, in fact, that I did something a lot of people might think is ridiculous: I chose to continue chemo. I couldn't picture myself tucking my boys into bed at night, knowing that I could have done more to prevent The Sickness from recurring. I've come this far...what's a few more months?
So I will press on. I will do every treatment I can within the time frame I've been given. Cancer is a terrible disease. I hate those abnormal silent cells with everything I have. And February 17th? I don't care for it much, either. But next year, I will be able to look back and remember that this is the day I chose to finish strong.
After the appointment, my mom and I had lunch together. There's nothing worse than crying in a restaurant with people all around you laughing and enjoying their lunches. I am just so sad. Even good scan results feel like a burden to carry. I am well aware that this sounds like a woe-is-me, glass-half-empty kind of narrative. I don't mean it that way at all. In fact, just in the few hours since I saw the doctor, I hugged two friends, laughed with my boys, kissed my husband, talked to my sister, and snuggled my dog. I am blessed beyond measure. It's just that I am at sort of a breaking point with The Sickness...it seems to be controlling me more than I am controlling it.
Tuesday, February 1, 2011
Confessions
And I have to confess that it won't be the first day that I've stayed in my pjs recently. I've had a rough go of it lately. It started on my last treatment day, when the woman in the chair next to me cried the whole time. It was her first chemo treatment, and she was scared. Part of me wanted to comfort her, but most of me was annoyed and angry--angry that she had to be there, angry that I had to be there, and angry at cancer in general. That treatment room is a terrible place. Cutesy ribbons and bows on the IV poles and cheery green plants on a desk can not disguise the reality of what goes on there. It's awful, and I hate it.
The side effects of last week's treatment were tough. They always are, but for some reason I had a more difficult time bouncing back. My emotional state is directly related, to a degree, to my physical pain. The more my body hurts, the more my heart hurts. Tuesdays are treatment days. I typically go pretty early in the morning, and I am back home by lunch time. I like to stop off at Schlotzsky's on my way home and grab lunch, sort of like a reward for myself for enduring the morning. My order is always the same: a small original sandwich, hold the lettuce, onion, and tomato. I get home, change into my pajamas, pop the first of several pain pills, and eat my sandwich. Then I put my best game face on, deal with it, and wait to feel better.
Only this time, Wednesday morning came and I did nothing. I didn't shower or change clothes. I didn't put on makeup. I didn't dig deep and look for the silver lining. I'm not even sure I brushed my teeth. I just let myself be sad. I looked for the closest pool of self-pity and jumped in. I watched kid TV with Baby during the day, and when it came time for church that evening, I did not make the boys go. It was just too much effort. Good mom, right?
Then it was Thursday. I had to do something very hard that brought to light some tough issues. I've said it before, and I'll say it again here: I am not the only one affected by The Sickness. My suffering is not solitary; the sorrow isn't isolated. On that particular day, it simply felt like more than I could bear.
On Friday night, my family chose from these three options for dinner: blueberry Eggos, chocolate chip Eggos, and cinnamon microwave pancakes. Again, the mundane everyday task of preparing a meal required more than I had to give.
I am facing another scan within the next couple of weeks, followed by a meeting with Dr. M. That meeting will determine what we do next. I asked my chemo nurse, and she said he more than likely will want me to continue with the maintenance chemo, in spite of its "uncomfortable" side effects. The reasons are solid: theoretically, the longer I suppress cancer cells with the chemo, the longer it will be before they can grow again. Makes sense.
But the anxiety and depression I feel knowing what's coming is ridiculous. Nearly one year after the start of Chapter 2, I still find it hard to believe that this will be the rest of my life. When I started this journey, I said that I did not want to lose myself and be identified by The Sickness. But more and more, I am afraid that is exactly what has happened. Pretty much everything I do (or don't do--i.e. cooking dinner!) is determined by how strong or sick I feel. I don't make plans without checking to see when my next treatment day will be. I don't laugh like I used to, or even cry like I used to. Not too long ago, I watched Steel Magnolias with my Bible Study sisters, and I didn't shed a tear when Shelby died. Not one. I was stone-faced when M'Lynn lost it in the cemetery. And I can't remember for certain, but I don't think I even laughed when Clairee offered up Ouiser as a sacrifice for her friend.
I am reading a book right now titled The Gift of an Ordinary Day by Katrina Kenison. The author is a mother of two sons, and the book is her memoir. In reading, I have captured a glimpse of what I want more than anything: plain old, ordinary days. Mornings that allow me to sleep as late as I want to instead of my wake-up time being dictated by last night's medication. Afternoons that are open for game-playing or park-going or just plain lazing around with my cowboys. Evenings that invite us to share a home-cooked meal on the back patio and count the airplanes that fly by or wonder about the rooster that we can hear through our neighbor's fence. Days that are blank squares on my calendar instead of doctor appointments. Days that don't involve pills or IVs. Days that I can look in the mirror and like what I see. Normal. Is that really too much to ask for?
Friday, December 31, 2010
A Quick Goodbye
Tuesday, December 28, 2010
A BIG Surprise
Hubby and I wanted to keep it a secret from the boys until Christmas morning. After the Christmas melee was over and we'd eaten breakfast, we sat them down and gave them each one more gift.
Little Middle: "Mom, is this a credit card?"
After the gifts were opened and the great cat was out of the bag, we called Nana and Poppy to say "thank you" for the Christmas gifts. That was when the final surprise came out: Not only are the five of us going to Disney World, but my parents are going, too! The boys were hootin', hollerin', and running in crazy circles!
In just a matter of weeks, hundreds of people in five different states donated money, airline miles, and other resources to make this trip possible. Every last detail, from park admission down to luggage fees, has been taken care of. There is a travel agent who worked feverishly to put together an itinerary so that we don't miss a thing. Meals are paid for, and we are even having breakfast one morning with Chef Mickey!
My Goliath will turn 9 while we are in Florida. I can't think of a better place for my gentle giant to spend his birthday than at Disney. Our friends arranged a special birthday surprise for him...I absolutely can't WAIT to see his face!
This Friday, seven very excited people will head to DFW airport to catch a plane to Orlando. We will be in the Magic Kingdom in time to watch the fireworks and ring in the new year. We will return to DFW next Thursday. I fully expect that we will be tired, happy, and chock full of memories that will last a lifetime.
To Our ChristMUST Wish Friends:
You are amazing. We are simply blown away by your generosity, your love, and your friendship. Many of you don't even know us, but you have shown us the love of Christ and given us great joy this holiday season. God has allowed us to walk a very dark and difficult road this year. There have been many days that I wasn't sure that I could, or even wanted to, take the next step. But along the way, God has been faithful to place people in my path who could cheer, encourage, and pray. "Thank you" is so inadequate to express how grateful I am that all of you allowed Him to use you in such a special way. But for now...Thank you for lightening my load and giving me something to look forward to (and brag to the chemo crew about!). Thank you for making my husband happy. Thank you for the smiles on my boys' faces. Thank you for the delight and excitement I hear in my parents' voices when I talk to them.
Joyfully,
Allyson
P.S. I will try to post small updates and pictures on Facebook while we are gone. Watch for them!
Friday, December 17, 2010
The Second Verse
We don't use that hymnal much these days. My kids are learning song lyrics from a screen in the worship center rather than the hymnal in the pew. In fact, I'm certain that that hymnal is not much more to them than a hard book to put under their children's bulletins that they work on during the sermon! And that makes me a little sad.
When I was growing up, sometimes I would get bored during the sermon. My mother suggested once that I listen carefully and write down all of the words I didn't understand. The only word I walked away with was "multitude," with a bunch of tally marks for every time the preacher said it. Sometimes I would pass the time reading the hymnal. Yes, I know it's kind of a dorky thing to do. But that opened my eyes to what I now consider to be often-overlooked treasures: the second verse. We always sing the first verse of a hymn, and often the third or fourth. But why not the second?
It's no wonder, then, that I was surprised in a good way as I was driving around town running errands with the radio on this week. "It Came Upon a Midnight Clear" has a second verse that strikes my heart and meets me right where I am this Christmas:
And ye, beneath life's crushing load
Every step I take feels painful and slow, and sometimes even backwards. Even my commitment to seek out joy this holiday season seems like a mountain in and of itself some days. I will gladly accept the invitation to leave my load beside the manger and listen to the angels sing.
And I will sing along...with my hymnal open.
Thursday, December 9, 2010
Scared
The scan takes less than 10 minutes, but it seemed so much longer than that. Finally, it was done and I was free to go. I collected my things and my mother and practically ran for the parking lot. Once we were safely in the car, I lost it. I simply could not contain the anxiety and fear any longer.
Mom, Baby, and I passed the waiting hours of Wednesday doing a little Christmas shopping while the big boys were at school. After school, there were spelling words to practice, friends to play with, and iCarly to watch. I'm pretty sure I've seen every episode of iCarly that there is. We went to bed early, and that brings us back to this morning. "Today is the day I will find out if I have cancer in my body."
As it turns out, the scan was clear. The emotions I felt with that news were a mixed bag: Relief, fear, joy, sorrow. Of course it was good news! It was exactly what I, along with so many of you, have prayed for. In the back of my mind, though, I can still feel the fear creeping in. This clear scan is just a reprieve...a temporary sigh of relief. The Sickness will be back, unless God overrules medicine (and He absolutely could choose to do that!).
I explained it to a close friend this afternoon this way: I feel like Eeyore, who always moved around with a dark cloud hovering over his head. No matter where he went or what he did, that cloud stayed with him. That's me. The cloud of cancer follows me everywhere. Just because it's not raining right now doesn't mean it isn't there or that I am not acutely aware of it. It permeates everything I think and do. It threatens to open up and pour down on me at any time. And do you want to know the truth? I am scared of it.
I hate that I'm scared. I want to be brave. My boys make me want to be brave. Whether or not my time with them is cut short, I desperately want them to remember that I trusted my Lord with all that I had. I want them to know that I faced the Sickness, if not cheerfully, than certainly with a welcoming spirit for the challenge. I want them to know that they were worth fighting for, and that the strength that I had to fight came from above.
Tonight I cooked one of their favorite dinners and we celebrated the good news with root beer floats. Watching them enjoy their desserts, I breathed a prayer of thanks that there is "no evidence of recurrent or metastatic disease." I asked God to help me slow down and be present in the here and now, and most of all, to help me get a handle on that spirit of power, love, and self-discipline. If God is for me, who can be against me?
Wednesday, December 1, 2010
This and That
Tuesday, November 9, 2010
Plan B
Now, I know that in the grand scheme of things, eyelashes don't matter. Hair won't get me to heaven. My husband won't judge the temperature of our relationship on whether or not I can flutter my eyelashes at him. The boys won't remember that Mommy's makeup looked different from other mommies. But to me, in the here and now, it matters. It suddenly seemed to matter even more after I questioned my chemo nurse about it, and she told me that there is a very real possibility that I could re-lose the hair on my head as well.